The College of Family Physicians of Canada (CFPC), on behalf of the Canadian Primary Care Sentinel Surveillance Network (CPCSSN), has signed a 29 month contribution agreement with the Public Health Agency of Canada (PHAC) to add three neurological conditions to the CPCSSN surveillance and research project. CPCSSN’s data collection will now include information on: rates of prevalence & incidence, risk factors, health care provision and utilization, and outcomes for Alzheimer’s and related dementias, Epilepsy, and Parkinson’s disease.
Alzheimer’s and related dementias, Epilepsy, and Parkinson’s disease and are three commonly found neurological conditions in Primary Care. CPCSSN is a pan-Canadian surveillance system which accesses chronic disease related data directly from the electronic medical records (EMR) of participating sentinel primary care providers, for the purposes of epidemiological research and health system utilization analyses. In order to include these conditions CPCSSN will develop and validate case definitions, as well as identify and define key additional variables related to their diagnosis, etiology and treatment. This project builds on the existing CPCSSN database to establish a primary care-based registry for patients with these conditions across the country.
CPCSSN will continue existing partnerships with CFPC, the Canadian Institute for Health Information (CIHI), Canadian Primary Care Practice Based Research Networks (CPCPBRN), Canadian Universities, and will also work in conjunction with the Alzheimer’s Society of Canada, Canadian League Against Epilepsy, Epilepsy Ontario, and the Parkinson’s Society of Canada.
Funding to integrate this neurological work with the main CPCSSN surveillance project began November 1, 2010.