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Three Neurological Conditions Added to CPCSSN Surveillance and Research Project

The College of Family Physicians of Canada (CFPC), on behalf of the Canadian Primary Care Sentinel Surveillance Network (CPCSSN), has signed a 29 month contribution agreement with the Public Health Agency of Canada (PHAC) to add three neurological conditions to the CPCSSN surveillance and research project.   CPCSSN’s data collection will now include information on: rates of prevalence & incidence, risk factors, health care provision and utilization, and outcomes for Alzheimer’s and related dementias, Epilepsy, and Parkinson’s disease.

Alzheimer’s and related dementias, Epilepsy, and Parkinson’s disease and are three commonly found neurological conditions in Primary Care. CPCSSN is a pan-Canadian surveillance system which accesses chronic disease related data directly from the electronic medical records (EMR) of participating sentinel primary care providers, for the purposes of epidemiological research and health system utilization analyses. In order to include these conditions CPCSSN will develop and validate case definitions, as well as identify and define key additional variables related to their diagnosis, etiology and treatment. This project builds on the existing CPCSSN database to establish a primary care-based registry for patients with these conditions across the country.

CPCSSN will continue existing partnerships with CFPC, the Canadian Institute for Health Information (CIHI), Canadian Primary Care Practice Based Research Networks (CPCPBRN), Canadian Universities, and will also work in conjunction with the Alzheimer’s Society of Canada, Canadian League Against Epilepsy, Epilepsy Ontario, and the Parkinson’s Society of Canada.

Funding to integrate this neurological work with the main CPCSSN surveillance project began November 1, 2010.

CPCSSN Media Launch at the Family Medicine Forum – Vancouver, BC

VANCOUVER, BC (October 14, 2010)—Family doctors and health planners now have access  to greater health information, thanks to a new and secure source of pan‐Canadian health  data launched today at  Family Medicine Forum 2010 in Vancouver. The Canadian Primary  Care Sentinel Surveillance Network (CPCSSN) is a ground‐breaking initiative—the first of  its kind in Canada —to help family physicians better understand and manage the chronic  diseases affecting their patients, as well as health planners face the challenge of controlling  chronic diseases in Canadian population…


Download Entire Media Release


CPCSSN Pilot and Feasibility Stages I and II

The CPCSSN pilot and feasibility stages I and II have been a remarkably successful venture resulting in the association of nine primary care research networks from six different provinces using seven different electronic medical record systems. Approximately 140 sentinel physician practices were recruited between 2008-2010.  CPCSSN’s goal is to have between 600-1000 sentinel physician practices by 2015. A national network of data managers, network directors strategized and effectively partnered with the CFPC throughout the two years of the feasibility project.  A fully functional, secure, de-identified central repository was established at the High Performance Computing Virtual Laboratory at Queen’s University for use by governments and academic researchers for both monitoring Canadian chronic disease rates and improving health care outcomes.  Internally, plausible disease prevalence rates across all networks for all five chronic conditions initially under study were produced.   Also, a viable denominator methodology using the yearly contact group was developed for chronic disease surveillance in Canada.  CPCSSN has taken advantage of the unique opportunity to embrace our current EMR technology for the purpose of primary healthcare surveillance.  After a successful 2 year pilot project the College of Family Physicians of Canada (CFPC) signed a 5 year agreement with the Public Health Agency of Canada (PHAC) to continue surveillance on 5 chronic diseases (COPD, depression, diabetes, hypertension, and osteoarthritis) using various EMRs.    Family physician offices working within nine (9) local primary care/practice-based research networks (PCPBRNs) across Canada form the Canadian Primary Care Sentinel Surveillance Network (CPCSSN).

PHAC hosts a consensus workshop

Public Health Agency of Canada (PHAC) hosted a consensus workshop on chronic disease indicators for a Canadian primary care sentinel surveillance system in Ottawa.   Attendees included representatives from the current board of directors of the Canadian Primary Care Sentinel Surveillance Network (CPCSSN) a sub-entity of the College of Family Physicians of Canada (CFPC), Chronic Disease Surveillance Advisory Committee, the Task Group on Surveillance of Chronic Disease and Injury, and the Canadian Institute of Health Information, and the Public Health Agency of Canada.  Recommendations from this meeting will be made available by the fall of 2010.

Presentations at NAPCRG Conference

CPCSSN presentations were given at North American Primary Care Research Group (NAPCRG) conference in Montreal (Nov 14-18), including :

– “A Canadian Primary Care Sentinel Surveillance Network (CPCSSN): Initial Development and Privacy Issues” by Jyoti Kotecha and Dr. Donna Manca
– “Towards a Primary Care-based Sentinel Surveillance System for Chronic Disease in Canada: Benefits and Implications for Public Health and Policies” by Dr. Richard Birtwhistle, Claudia Lagacé and Anita Lambert-Lanning

Family Medicine Forum 2009

Family Medicine Forum 2009 in Calgary (Oct 29-31), included CPCSSN materials:

  • “Improving data quality in EMRs for chronic disease management” – a presentation by Dr. Richard Birtwhistle, Dr. Karim Keshavjee, Ken Martin and Anita Lambert-Lanning
  • “Development of the Canadian Primary Care Sentinel Surveillance Network (CPCSSN): The Newfoundland Perspective” – a poster presented by Tao Chen

5th Annual Practice Based Research Network Conference

CFPC members , Dr. Richard Birtwhistle MD, CCFP, FCFP and Dr. Karim Keshavjee MD, CCFP provided the opening plenary presentations about the progress of the CPCSSN initiative at the 5th Annual Practice Based Research Network Conference hosted by the Agency for Healthcare Research and Quality (AHRQ), June 24-26, 2009 in Bethesda, Maryland.  The presentations shared details about the Canadian Primary Care Sentinel Surveillance Network (CPCSSN) and preliminary results from this major, multi-practice based research network (PBRN) effort to monitor and understand chronic care management by primary care clinicians using EMRs in Canada. Click on Dr. Keshavjee’s to view his slides and click on Dr. Birtwhistle to view his slides.

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