CPCSSN Privacy Program receives Innovation Award!

CPCSSN’s privacy program has been awarded the 2013 Innovation Award by the International Association of Privacy Professionals(IAPP) award for organizations of 5,000 or fewer employees organization category.

Congratulations most especially to CPCSSN’s Research Privacy and Ethics Officer (RPEO) Jannet Ann Leggett Ll.B./JD, CIPP/C,M.IP and Donna Manca MD,CCFP, Director of Research Department of Family Medicine University of Alberta for the leadership they have brought to the Privacy and Ethics Sub-Committee (PES-C) of CPCSSN.

IAPPaward2013 Jannet-Donna-receiving_IAPPaward

Mainpro-C Credits Online Form now Available

Sentinels can now complete an online submission form for Mainpro-C Credits under the CPCSSN Quality Assurance Program.  If you want to have the Mainpro C credits applied to your membership information please follow these steps:

1. go to http://www.cfpc.ca/CreditForms/  and login with your individual CFPC membership information

2. then look for “MainproC CPCSSN practice audit” forms and option only and when finished click on SUBMIT!

If you want to just have a look at the submission form click here: CPCSSN Quality Assurance Program – Submission form for Mainpro-C Credits

note: If you click on SUBMIT without being logged in as a member your Mainpro C credits will not be automatically applied.



CPCSSN Research Privacy and Ethics Officer Named Privacy by Design Ambassador

Jannet Ann Leggett 280x280We’re proud to announce that CPCSSN Research Privacy and Ethics Officer Jannet Ann Leggett has been named a Privacy by Design Ambassador by Ontario’s Information and Privacy Commissioner, Ann Cavoukian.

Check out Jannet’s page on the Privacy by Design website by clicking here.

If you have any questions or comments about CPCSSN’s work on privacy, you can contact Jannet through our CPCSSN Staff Page or CPCSSNPrivacyOfficer@cfpc.ca.

Establishment of CPCSSN as a Standing Committee of the CFPC Board

The College of Family Physicians of Canada (CFPC) has now approved the establishment of CPCSSN as a Standing Committee of the CFPC Board!

Dr. Marie-Dominique Beaulieu, Chair of the CFPC Board of Directors expressed the following in a message to Dr. Richard Birtwhistle, Chair of the CPCSSN “…the CFPC Board of Directors met June 1, 2012 and fully supported the establishment of a CPCSSN standing committee within the College, with you as Chair.”

Inaugural Progress meeting at NPHSNC

The inaugural progress meeting of the National Population Health Study of Neurological Conditions (NPHSNC) was held in Toronto on March 1, 2011.  Over 140 researchers, stakeholders and government representatives and Neurological Health Charities Canada (NHCC) members received a detailed introduction to the work taking place across the country.  Drs. Richard Birtwhistle and Neil Drummond, primary investigators for the Neurological conditions project within CPCSSN, and Anita Lambert-Lanning, CPCSSN manager attended the event on behalf of CPCSSN.  Download Brain Matters newsletters at:  http://www.mybrainmatters.ca/en/brain-matters-newsletter

Three Neurological Conditions Added to CPCSSN Surveillance and Research Project

The College of Family Physicians of Canada (CFPC), on behalf of the Canadian Primary Care Sentinel Surveillance Network (CPCSSN), has signed a 29 month contribution agreement with the Public Health Agency of Canada (PHAC) to add three neurological conditions to the CPCSSN surveillance and research project.   CPCSSN’s data collection will now include information on: rates of prevalence & incidence, risk factors, health care provision and utilization, and outcomes for Alzheimer’s and related dementias, Epilepsy, and Parkinson’s disease.

Alzheimer’s and related dementias, Epilepsy, and Parkinson’s disease and are three commonly found neurological conditions in Primary Care. CPCSSN is a pan-Canadian surveillance system which accesses chronic disease related data directly from the electronic medical records (EMR) of participating sentinel primary care providers, for the purposes of epidemiological research and health system utilization analyses. In order to include these conditions CPCSSN will develop and validate case definitions, as well as identify and define key additional variables related to their diagnosis, etiology and treatment. This project builds on the existing CPCSSN database to establish a primary care-based registry for patients with these conditions across the country.

CPCSSN will continue existing partnerships with CFPC, the Canadian Institute for Health Information (CIHI), Canadian Primary Care Practice Based Research Networks (CPCPBRN), Canadian Universities, and will also work in conjunction with the Alzheimer’s Society of Canada, Canadian League Against Epilepsy, Epilepsy Ontario, and the Parkinson’s Society of Canada.

Funding to integrate this neurological work with the main CPCSSN surveillance project began November 1, 2010.

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