The Canadian Primary Care Sentinel Surveillance Network (CPCSSN) is Canada’s first multi-disease surveillance system based on primary care electronic medical record (EMR) data.

The data comes from physicians participating in 10 practice based research networks across Canada, extracted from multiple EMR systems.  The data is extracted quarterly, mapped to a common database structure then cleaned and coded.   Case detection algorithms are run against the dataset to identify individuals with one or more of eight chronic conditions (diabetes, hypertension, osteoarthritis, depression, chronic obstructive lung disease, dementia, Parkinson’s disease and epilepsy).

The data within the CPCSSN database can be used to serve a number of different purposes and provide timely answers to relevant questions. For a downloadable copy of the CPCSSN case definitions click below.

View current ”CPCSSN Disease Definitions”

For example, the data could be used to identify differences in disease rates, like osteoarthritis, in the populations of Alberta, Quebec and the Atlantic provinces to better understand the need for health resources in different regions.  There are many more possibilities – many of which were never possible before the creation of CPCSSN.

Take a look at the documents available for viewing and downloading below that provide further details about CPCSSN data. If you wish to discuss your data needs please contact: John Queenen, PhD / CPCSSN Epidemiologist / Centre for Studies in Primary Care (CSPC)/ Department of Family Medicine Queen’s University, K7L 5E9 / Tel: 613-533-9300,Ext.73838 / e-mail: johnq@cpcssn.org

CPCSSN Data Product Package

The first step for most researchers is to request CPCSNN’s Data Sample Package, which provides a sample data set as well as other helpful materials to explain CPCSSN’s data collection and access process.

To request a copy of the Data Sample Package, please click the button below to fill out the request form and a member of the CPCSSN team will be in contact with you to finalize your request.   If you only need a copy of the validated disease definitions click here to view or download a pdf copy of  case-definitions .

Letter of Intent for a Proposed Study with CPCSSN Data

For researchers who would like to include CPCSSN data as part of a research study, submitting a Letter of Intent (LOI) outlining their proposed research and data required is the first stage in the process. Details of the process of acquiring CPCSSN data for a research study, including proposal evaluation criteria and proposal submission & processing steps are available below.

Please note: We only release calculated (derived) data to researchers, with justification for the fields you are requesting.

Enter & Submit ”Letter of Intent”

After receiving your Letter of Intent, a member of the CPCSSN team will contact you and help with the review and approval process.