CPCSSN does not extract any directly identifiable patient information, such as healthcare number, name, address, phone number, etc. All patients, providers, and clinics are assigned a random study ID; no names of clinics or providers are included in the CPCSSN database. There is additional de-identification software that is run to fully anonymize the data before … Read more How does CPCSSN ensure privacy and confidentiality?
Patients expect that their data are used to generate knowledge for better healthcare services/systems. All patients have the option to opt out of having their data included in the CPCSSN database. Although, we have very low numbers of opt outs across Canada. Patients who do wish to opt out can notify their primary care practitioner … Read more What are patient expectations and how do they provide consent?
The College of Family Physicians endorses CPCSSN for their practice improvement initiative (PII). They helped CPCSSN to create the opt-out model when the project began over 10 years ago.