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Canadian Primary Care Sentinel Surveillance Network (CPCSSN)

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December 17, 2020 / Last updated : June 13, 2024 Anita Accessing Data

Researcher driven changes post-application

Changing the DAR once submitted requires additional work by CPCSSN. Requesting modifications to a DAR after its submission to the CPCSSN, but before its approval, may incur a fee up to $2,500.00 depending on the complexity of the project and the requested modification(s).

December 17, 2020 / Last updated : December 17, 2020 Anita Uncategorized FAQ

Can I conduct research using CPCSSN?

Yes – researchers approved by CPCSSN can request fully anonymized data sets from CPCSSN with which to conduct research. These are in addition to the Data Presentation Tool (DPT), CPCSSN’s quality improvement tool.

December 17, 2020 / Last updated : November 3, 2023 Anita General data information

What is data linkage and how does it relate to CPCSSN?

Linking data allows for more exhaustive data sets and can enable research involving multiple variables that cannot be researched with one data source alone. CPCSSN has linked CPCSSN-collected electronic medical record data with complementary administrative health data so that complex conditions involving many variables can be researched. For example, a CIHR-funded study is examining frailty […]

December 17, 2020 / Last updated : December 17, 2020 Anita Uncategorized FAQ

What does the College of Family Physicians and Surgeons and Canadian Medical Protective Association (CMPA) think about the opt-out model of consent?

The College of Family Physicians endorses CPCSSN for their practice improvement initiative (PII). They helped CPCSSN to create the opt-out model when the project began over 10 years ago.

December 17, 2020 / Last updated : December 17, 2020 Anita Uncategorized FAQ

What are patient expectations and how do they provide consent?

Patients expect that their data are used to generate knowledge for better healthcare services/systems. All patients have the option to opt out of having their data included in the CPCSSN database. Although, we have very low numbers of opt outs across Canada. Patients who do wish to opt out can notify their primary care practitioner […]

December 17, 2020 / Last updated : December 17, 2020 Anita Uncategorized FAQ

How does CPCSSN ensure privacy and confidentiality?

CPCSSN does not extract any directly identifiable patient information, such as healthcare number, name, address, phone number, etc. All patients, providers, and clinics are assigned a random study ID; no names of clinics or providers are included in the CPCSSN database. There is additional de-identification software that is run to fully anonymize the data before […]

December 17, 2020 / Last updated : November 2, 2023 Anita General data information

What happens when you do data extraction refresh?

The most reliable and accurate method is to re-do the full data extraction at every refresh. This means all previously extracted data will be re-extracted along with any new data since the previous extraction. All data will be re-processed and the clinician’s DPT will be updated accordingly.

December 17, 2020 / Last updated : November 2, 2023 Anita General data information

What data are extracted from patient records?

CPCSSN does NOT extract all patient data. CPCSSN extracts mainly structured data (e.g. lab values, blood pressure) and not notes or PDFs contained within EMR. CPCSSN does NOT extract identifiable information—we take great pains to extract only de-identified data. Data are extracted from specific fields (e.g. billing, health condition, reason for visit, lab, medications) and […]

December 17, 2020 / Last updated : November 2, 2023 Anita General data information

How often are data extracted?

Each type of EMR system differs slightly in the extraction process. Data extractions occur twice each year (or quarterly in some regions) on June 30 and December 31. The data cleaning, coding, and standardization processes usually take 1-2 months after the data are extracted.

December 17, 2020 / Last updated : December 17, 2020 Anita Uncategorized FAQ

What am I committing to in the longer term?

Once your practice has enrolled, data are automatically extracted from your practice’s EMR without any ongoing effort on your part. Periodically, CPCSSN may seek to make changes to the range of data collected or uses of collected data. In this situation, we will inform sites of potential changes and may seek your renewed consent to […]

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Canadian Primary Care Sentinel Surveillance Network
Queen's University, Department of Family Medicine
220 Bagot St., Kingston, ON K7L 5E9
Phone: 613.533.9300 ext 73934
Fax : 613.533.9300
E-mail: info@cpcssn.org

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  • About Us
    • Governance
    • Partners and Stakeholders
    • Meet Our Team
    • Contact Us
    • Join CPCSSN
      • For Researchers
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  • Regional Networks
    • British Columbia
    • Alberta
      • Southern Alberta
      • Northern Alberta
    • Manitoba
    • Ontario
      • Hamilton
      • Toronto
      • Kingston
      • Ottawa
      • London
      • Thunder Bay/Sudbury
      • Alliance | EPIC
      • Ontario PBLN
    • Québec
    • Newfoundland and Labrador
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