What are patient expectations and how do they provide consent?

Patients expect that their data are used to generate knowledge for better healthcare services/systems. All patients have the option to opt out of having their data included in the CPCSSN database. Although, we have very low numbers of opt outs across Canada. Patients who do wish to opt out can notify their primary care practitioner or a clinical staff member, who then must notify their regional CPCSSN network.