Benefits and Value
The Canadian Primary Care Sentinel Surveillance Network (CPCSSN) securely collects de-identified health information from electronic medical records of participating primary care clinicians (e.g. family physicians and nurse practitioners) who are referred to as ‘sentinels.’ There are potential opportunities to link CPCSSN data with other aspects of the health system (i.e. hospitalization data). This work allows researchers, policy makers, and clinicians to better understand primary healthcare and delivery, disease trends, and improve patient care across the country.
Members of CPCSSN can request fully anonymized data sets from CPCSSN with which to conduct research. Data linkage of CPCSSN to other data are possible in order to provide researchers with a full picture of what is happening across health networks and provinces. Data linkage is a technique that associates two distinct data sources so that data that relate to the same individual, group, or unit can be combined for analysis.
Linking data allows for more exhaustive data sets and can enable research involving multiple variables that cannot be researched with one data source alone. CPCSSN has linked CPCSSN-collected electronic medical record data with complementary administrative health data so that complex conditions involving many variables can be researched. For example, a CIHR-funded study is examining frailty among elderly adults, which requires information on several physiological functions (e.g. blood pressure) in addition to information on the use of health care services (e.g. hospitalizations). Data linkages must be conducted within each regional network and may not feasible in all networks.
CPCSSN Data Access Fees Policy
Access to primary care electronic medical record data are made possible by the ongoing acquisition & standardized processing of electronic medical record data across Canada. Follow the link below to learn more about CPCSSN’s Data Access Fees Policy.
Letter of Intent
Researchers who would like to include CPCSSN data as part of a research study will also need to submit a Letter of Intent (LOI) outlining their proposed research and data required. To submit a letter of intent fill out the form below. Before submitting an LOI review the LOI Evaluation Criteria and LOI Processing Steps. After receiving your LOI, a member of the CPCSSN team will contact you and help you with the review and approval process. We only release derived data to researchers with justification for the fields you are requesting.