Formation of disease registries in a large Family Health Team (FHT): a CPCSSN demonstration project

Dr. Michelle Greiver provided a summary of the successful implementation of a Health Service Use (HSU) EMR feedback tool to Canada Health Infoway Regional Staff Meeting in Toronto – Tuesday Dec. 10, 2013. This project was supported by Canada Health Infoway’s HSU funding for enhanced testing in Ontario of a sentinel feedback tool developed primarily by CPCSSN data managers Dave Jackson and Bryan Forst based in Alberta.

Registries benefit from standardized data to indicate the presence of conditions. Standardized coding for chronic diseases may not be present in Electronic Medical Records (EMRs). This can impede quality improvement efforts that rely on registries for denominators. We implemented team-based methods to standardize chronic disease coding in primary care EMRs.

Outcomes from this successful demonstration project include:
1. Return of cleaned data and DPT implementation is feasible in primary care
2. Data quality can be improved at the practice level
3. Free text in EMRs can be mapped to standardized SNOMED CT terms demonstrated in the large NYFHT which is part of the UTOPIAN practice based research network
4. Patients can be safely re-identified within the circle of care for tracking and follow-up
5. Scalable processes can be implemented to enable the active use of data for QI projects

click here to have a look at the full presentation by Dr. Greiver to the CHInfoway regional meeting.